Friday, July 3, 2009

NO Clinical Trial For me!

Always exciting news from Akron Oh! So turns out that I coudn't do the clinical trial after all. Apparently my platelets are way to low and I would have to get transfusions like each time to bring them up just so they are up to standards for me to even take the treatment. So given that and that this is a powerful drug we decided that we will not be moving forward with that. So whats next you might ask? Who knows! I will continue to get Herceptin and Zomeda so that should help keep the other organs stable and Zomeda is the bone strengthner.

There is this one brain tumor drug called Temodar that we plan to try...pending on insurance because it is very expensive. The kicker about this drug is that it is a brain cancer drug, it is not a drug for breast cancer that has gone in the brain. So its different than the drugs before hence insurance will look at it a little closer. But it has shown to cross the blood/brain barrier so there is hope that it might do something. And also it is not as toxic as the clinical trial drug so that gives some comfort. The big side effect for this one is constipation...so the oppsoite effect of what the clinical trial side effects would have been. It is 5 pills...take 1 each day for 5 days then like 3 weeks off...so dosage is good too. So we will see if I get on this chemo drug. But for now its status quo with just a daily dose of prayers to the Lord as the medicine of the day!

2 comments:

Daria said...

Damn wish we had some more options ...

Unknown said...

We'll keep the prayers coming! Fingers crossed on the insurance company too..

Love you and wish there was more I could do.